Thursday, May 17, 2018

Chemo Tips

I have 2 AC infusions left to go.  By the time I recover from my last infusion, I'll have been through about 6 months of chemo.  I'm not looking forward to surgery, radiation, and reconstruction, but I can't wait to finish chemo!

For anyone who'll be going through chemo themselves, I'm hoping this can be helpful to you.  Feel free to email me for more info on specific products I've used. 

These are the things I've found most helpful during this process.  I'm leaving out the things you can't buy, because I think it goes without saying that supportive and loving family and friends are the number one thing you need to make it through.  Though for some people, maybe buying friends is an option.  Who knows?

I didn't use cold caps (which can lessen hair loss), but have used ice socks and ice mitts throughout chemo.  I have had absolutely no neuropathy, and my MedOnc is going to recommend that her other patients use them as well, since I've had such success.  I bought mine on Amazon; I think they're all similar.  Buy extra ice packs so you (or your chemo companion) can switch them out partway through each infusion.  My ice socks & mitts went on about 10 minutes before chemo started (but after the premeds) each time and stayed on until it ended, usually with 1 quick bathroom break.  They're miserable - especially the socks - but it's worth it to not have ended up with neuropathy.

I had someone with me for each infusion, but almost always preferred to zone out with something on my Kindle Fire.  I bought a 10 inch HD version and some good earbuds before starting chemo and it's been a lifesaver.  We have Netflix, Hulu, and Amazon Prime and I caught up on Doctor Who, rewatched (for the third time...) Parks & Rec, watched all of Psych...  I've used it during infusions, but also at home when I feel terrible and need to block out any outside stimulus.  You can also play games or read books on it.  I highly recommend a good tablet for chemo.  We call mine my Chemo Fire to differentiate it from my regular Fire or my Paperwhite.  I like Kindles.

Hard candies!  I found corn-free ones (I'm allergic), but have read that Jolly Ranchers are popular for most ladies.  Anytime my port was flushed when it was accessed, the saline tasted nasty, so the hard candies helped to cover that.  I went through 2-3 each infusion.

Saltines.  Jamie would bring something more substantial for him to eat while we were there, but I was usually feeling pretty cruddy and didn't want an actual meal.  Also, my hands were in huge ice mitts.  So he would feed me saltines so I'd have something in my tummy.  It worked.

A cozy blanket from home.  The kids (with my mom's help) made me a fleece blanket that I have had with me for each infusion.  I'm always cold because of the ice socks/mitts, so having that has been wonderful.  

A big water cup with a handle and flexible straw.  Mine is a hospital maternity gift we've had forever; it holds 32 ounces, so I know if I get through 2 of them a day I'm doing well with my water.  The handle and flexible straw make it easy to drink from whether I'm wearing ice mitts or simply feeling weak and cruddy.

At home, a comfy recliner with a side table.  I spend most of my recovery days in the recliner and the side table is full of my stuff - chapstick, Kleenex (with a trash can next to the table), prescription bottles, etc.  

Next to the recliner - an extension cord with all my chargers plugged into it.  Everything can reach the recliner so I don't have to worry about anything running out of juice.

Chemo hasn't been easy, but I've escaped some of the side effects that I was told I would get.  Granted, I still have 2 infusions left, but things have been "good" so far.  A few things that have helped:

A daily probiotic.  I've been taking one for a while - since before my diagnosis - and I think that has helped me escape the diarrhea and/or constipation that chemo normally causes.  I still get "chemo tummy" the day of an infusion (diarrhea) and take stool softeners to counter my pain killer's constipation side effect, but really haven't had any major issues.  I think the probiotic has really helped with that.  I use the Target (Up & Up) brand of the Culturelle Kids stir-in powder.  (It's corn-free.)

Multiple swishings every day of a baking soda & water solution.  Chemo (especially AC) can cause mouth sores, but I've swished 3-4 times a day with this solution and haven't had that problem.  (about 1 tsp baking soda in 20 oz of water.)  I also use a toothpaste (Tom's) that has both fluoride and baking soda in it.

Dark nail polish.  Other breast cancer patients had said that using dark polish during treatment was a way to protect your nails (a lot of times chemo causes them to fall off, develop sores underneath, etc.), so I got permission from my MedOnc to use it.  I'm alternated OPI Black Onyx and OPI Lincoln Park After Dark and have had no nail issues whatsoever.  I've lost my brows and lashes, but at least I still have pretty nails!

2 ACs to go, and then surgery will be toward the end of July.  I'll just keep trusting God and let Him handle this!

Trish signature for blog


Diwakar said...

Hello Mrs. Trish. I am a Pastor from Mumbai, india. I am glad to stop by your profile on the blogger and the blog post. I am also blessed and feel privileged and honored to get connected with you as well as know you and about your sickness. I am encouraged to see how you can be a source of help to others who have similar breast cancer. I am sure your tips to such sisters will be of so much help. Be assured of our prayers for you as you fully recover from chemo therapy. I love getting connected with the people of God around the globe to be encouraged, strengthened and praying for one another. I have been in the Pastoral ministry for last 40 yrs in this great city of Mumbai a city with a great contrast where richest of rich and the poorest of poor live. We reachout to the poorest of poor with the love of Christ to bring healing to the brokenhearted. We also encourage young and the adults from the west to come to Mumbai to work with us during their vacation time. We would love to have you come to Mumbai to work with us during your vacation time. Iam sure you will have life changing experience. Looking forward to hear from you very soon. God's richest blessings on you, your family and friends also wishing you and your family a blessed and a Christ centred rest of the year 2018. My email idis: dhwankhede(at)gmail(dot)com and my name is Diwakar Wankhede.

Related Posts Plugin for WordPress, Blogger...